<?xml version="1.0" encoding="ISO-8859-1"?><article xmlns:mml="http://www.w3.org/1998/Math/MathML" xmlns:xlink="http://www.w3.org/1999/xlink" xmlns:xsi="http://www.w3.org/2001/XMLSchema-instance">
<front>
<journal-meta>
<journal-id>2218-3620</journal-id>
<journal-title><![CDATA[Revista Universidad y Sociedad]]></journal-title>
<abbrev-journal-title><![CDATA[Universidad y Sociedad]]></abbrev-journal-title>
<issn>2218-3620</issn>
<publisher>
<publisher-name><![CDATA[Editorial "Universo Sur"]]></publisher-name>
</publisher>
</journal-meta>
<article-meta>
<article-id>S2218-36202024000700205</article-id>
<title-group>
<article-title xml:lang="es"><![CDATA[Comparativa Internacional sobre Protección de Derechos de Personas con Enfermedades Catastróficas en Ecuador]]></article-title>
<article-title xml:lang="en"><![CDATA[International Comparison on Protection of Rights of People with Catastrophic Illnesses in Ecuador]]></article-title>
</title-group>
<contrib-group>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Cisneros Zúñiga]]></surname>
<given-names><![CDATA[Cinthya Paulina]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Jiménez Martínez]]></surname>
<given-names><![CDATA[Roberto Carlos]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Ricardo Velázquez]]></surname>
<given-names><![CDATA[Manuel]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
<contrib contrib-type="author">
<name>
<surname><![CDATA[Vásquez Llerena]]></surname>
<given-names><![CDATA[Erick Manuel]]></given-names>
</name>
<xref ref-type="aff" rid="Aff"/>
</contrib>
</contrib-group>
<aff id="Af1">
<institution><![CDATA[,Universidad Regional Autónoma de los Andes, UNIANDES  ]]></institution>
<addr-line><![CDATA[ Puyo]]></addr-line>
<country>Ecuador</country>
</aff>
<pub-date pub-type="pub">
<day>00</day>
<month>00</month>
<year>2024</year>
</pub-date>
<pub-date pub-type="epub">
<day>00</day>
<month>00</month>
<year>2024</year>
</pub-date>
<volume>16</volume>
<fpage>205</fpage>
<lpage>212</lpage>
<copyright-statement/>
<copyright-year/>
<self-uri xlink:href="http://scielo.sld.cu/scielo.php?script=sci_arttext&amp;pid=S2218-36202024000700205&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.sld.cu/scielo.php?script=sci_abstract&amp;pid=S2218-36202024000700205&amp;lng=en&amp;nrm=iso"></self-uri><self-uri xlink:href="http://scielo.sld.cu/scielo.php?script=sci_pdf&amp;pid=S2218-36202024000700205&amp;lng=en&amp;nrm=iso"></self-uri><abstract abstract-type="short" xml:lang="es"><p><![CDATA[RESUMEN A pesar de su reconocimiento constitucional como grupo vulnerable, las personas con enfermedades catastróficas en Ecuador enfrentan desventajas significativas en el diagnóstico, tratamiento y acceso a atención médica especializada, lo que impacta negativamente en su calidad de vida y bienestar emocional. Se empleó una metodología mixta que combina análisis cualitativos de normativas y encuestas cuantitativas, revelando una discrepancia entre la legislación existente y su aplicación efectiva. La investigación compara el marco normativo ecuatoriano con estándares internacionales, destacando que, aunque Ecuador ha adoptado un enfoque progresista al constitucionalizar el derecho a la salud, las carencias en la implementación persisten. Los resultados sugieren que, si bien existen mecanismos judiciales como la Acción de Protección Constitucional, su efectividad depende de la accesibilidad y el compromiso institucional. Por lo tanto, se concluye que es imperativo un esfuerzo coordinado entre el gobierno, las autoridades de salud y la sociedad civil para desarrollar políticas públicas que aseguren no solo atención médica adecuada, sino también estabilidad laboral y acceso a tratamientos costosos. Este enfoque integral es crucial para salvaguardar la dignidad y el bienestar de las personas afectadas, alineándose con los compromisos internacionales en materia de derechos humanos.]]></p></abstract>
<abstract abstract-type="short" xml:lang="en"><p><![CDATA[ABSTRACT Despite their constitutional recognition as a vulnerable group, people with catastrophic illnesses in Ecuador face significant disadvantages in diagnosis, treatment and access to specialized medical care, which negatively impacts their quality of life and emotional well-being. A mixed methodology was used that combines qualitative analysis of regulations and quantitative surveys, revealing a discrepancy between existing legislation and its effective application. The research compares the Ecuadorian regulatory framework with international standards, highlighting that, although Ecuador has adopted a progressive approach in constitutionalizing the right to health, shortcomings in implementation persist. The results suggest that, although judicial mechanisms such as the Constitutional Protection Action exist, their effectiveness depends on accessibility and institutional commitment. Therefore, it is concluded that a coordinated effort between the government, health authorities and civil society is imperative to develop public policies that ensure not only adequate medical care, but also job stability and access to expensive treatments. This comprehensive approach is crucial to safeguard the dignity and well-being of affected people, aligning with international human rights commitments.]]></p></abstract>
<kwd-group>
<kwd lng="es"><![CDATA[Legislación internacional]]></kwd>
<kwd lng="es"><![CDATA[Derechos]]></kwd>
<kwd lng="es"><![CDATA[Protección]]></kwd>
<kwd lng="es"><![CDATA[Normas]]></kwd>
<kwd lng="en"><![CDATA[International legislation]]></kwd>
<kwd lng="en"><![CDATA[Rights]]></kwd>
<kwd lng="en"><![CDATA[Protection]]></kwd>
<kwd lng="en"><![CDATA[Standards]]></kwd>
</kwd-group>
</article-meta>
</front><back>
<ref-list>
<ref id="B1">
<nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Ayesh]]></surname>
<given-names><![CDATA[W.]]></given-names>
</name>
<name>
<surname><![CDATA[Hassan]]></surname>
<given-names><![CDATA[A. A. I.]]></given-names>
</name>
<name>
<surname><![CDATA[Jaafar]]></surname>
<given-names><![CDATA[H.]]></given-names>
</name>
<name>
<surname><![CDATA[Khorshid]]></surname>
<given-names><![CDATA[O.]]></given-names>
</name>
<name>
<surname><![CDATA[Laviano]]></surname>
<given-names><![CDATA[A.]]></given-names>
</name>
<name>
<surname><![CDATA[Lovey]]></surname>
<given-names><![CDATA[J.]]></given-names>
</name>
<name>
<surname><![CDATA[Mahrous]]></surname>
<given-names><![CDATA[M.]]></given-names>
</name>
<name>
<surname><![CDATA[Mogawer]]></surname>
<given-names><![CDATA[E.]]></given-names>
</name>
<name>
<surname><![CDATA[Molla]]></surname>
<given-names><![CDATA[H.]]></given-names>
</name>
<name>
<surname><![CDATA[Morsy]]></surname>
<given-names><![CDATA[A.]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Unmet needs in cancer patients: Creating recommendations to overcome geographical disparities in economic growth]]></article-title>
<source><![CDATA[Clinical Nutrition ESPEN]]></source>
<year>2023</year>
<volume>55</volume>
<page-range>267-76</page-range></nlm-citation>
</ref>
<ref id="B2">
<nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Dhankhar]]></surname>
<given-names><![CDATA[A.]]></given-names>
</name>
<name>
<surname><![CDATA[Kumari]]></surname>
<given-names><![CDATA[R.]]></given-names>
</name>
<name>
<surname><![CDATA[Bahurupi]]></surname>
<given-names><![CDATA[Y. A.]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Out-of-pocket, catastrophic health expenditure and distress financing on non-communicable diseases in India: A systematic review with meta-analysis.]]></article-title>
<source><![CDATA[Asian Pacific Journal of Cancer Prevention: APJCP]]></source>
<year>2021</year>
<volume>22</volume>
<numero>3</numero>
<issue>3</issue>
<page-range>671</page-range></nlm-citation>
</ref>
<ref id="B3">
<nlm-citation citation-type="">
<collab>Ecuador. Asamblea Nacional</collab>
<source><![CDATA[Ley de Seguridad Social. Suplemento Del Registro Oficial No. 465 30 de Noviembre 2001 Última Reforma: Segundo Suplemento Del Registro Oficial 36, 05-04-2022]]></source>
<year>2001</year>
</nlm-citation>
</ref>
<ref id="B4">
<nlm-citation citation-type="">
<collab>Ecuador. Asamblea Nacional</collab>
<source><![CDATA[Ley Orgánica del Servicio Público, LOSEP. Registro Oficial Suplemento 294 de 06-Oct.-2010]]></source>
<year>2010</year>
</nlm-citation>
</ref>
<ref id="B5">
<nlm-citation citation-type="">
<collab>Ecuador. Asamblea Nacional Constituyente</collab>
<source><![CDATA[Constitución de la República de Ecuador. Registro Oficial 449. Última Modificación: 25-Ene.-2021]]></source>
<year>2008</year>
</nlm-citation>
</ref>
<ref id="B6">
<nlm-citation citation-type="">
<collab>Ecuador. Asamblea Nacional Constituyente</collab>
<source><![CDATA[Código Orgánico Integral Penal, COIP. Registro Oficial No. 180 de 10-Feb.2014]]></source>
<year>2014</year>
</nlm-citation>
</ref>
<ref id="B7">
<nlm-citation citation-type="">
<collab>Ecuador. Congreso Nacional</collab>
<source><![CDATA[Ley Órganica de la Salud. Registro Oficial Suplemento 423 Del 22-Dic-2006.Última Reforma: 12-Apr-2017]]></source>
<year>2006</year>
</nlm-citation>
</ref>
<ref id="B8">
<nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Mendoza-Pinto]]></surname>
<given-names><![CDATA[C.]]></given-names>
</name>
<name>
<surname><![CDATA[García-Carrasco]]></surname>
<given-names><![CDATA[M.]]></given-names>
</name>
<name>
<surname><![CDATA[Cervera]]></surname>
<given-names><![CDATA[R.]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Role of infectious diseases in the antiphospholipid syndrome (including its catastrophic variant)]]></article-title>
<source><![CDATA[Current Rheumatology Reports]]></source>
<year>2018</year>
<volume>20</volume>
<page-range>1-7</page-range></nlm-citation>
</ref>
<ref id="B9">
<nlm-citation citation-type="">
<collab>PRESIDENTE CONSTITUCIONAL DE LA REPUBLICA</collab>
<source><![CDATA[Reglamento a la Ley Orgánica de Discapacidades. Registro Oficial Suplemento 109 de 27-Oct.-2017]]></source>
<year>2017</year>
</nlm-citation>
</ref>
<ref id="B10">
<nlm-citation citation-type="journal">
<person-group person-group-type="author">
<name>
<surname><![CDATA[Yadav]]></surname>
<given-names><![CDATA[J.]]></given-names>
</name>
<name>
<surname><![CDATA[Menon]]></surname>
<given-names><![CDATA[G. R.]]></given-names>
</name>
<name>
<surname><![CDATA[John]]></surname>
<given-names><![CDATA[D.]]></given-names>
</name>
</person-group>
<article-title xml:lang=""><![CDATA[Disease-specific out-of-pocket payments, catastrophic health expenditure and impoverishment effects in India: an analysis of National Health Survey data.]]></article-title>
<source><![CDATA[Applied Health Economics and Health Policy]]></source>
<year>2021</year>
<volume>19</volume>
<page-range>769-82</page-range></nlm-citation>
</ref>
</ref-list>
</back>
</article>
