Abstract

HERNANDEZ SARDUY, Ramón; MORALES MESA, Mileidy  and  CASTRO RODRIGUEZ, José Antonio. Home rehabilitation for epidermolysis bullosa. Medicentro Electrónica [online]. 2021, vol.25, n.1, pp. 126-136.  Epub Jan 01, 2021. ISSN 1029-3043.

Epidermolysis bullosa is a heterogeneous group of genetically determined chronic diseases characterized by blistering of the skin and mucosa. This rare condition is also called "butterfly or crystal skin children", and it can cause them a neurodevelopmental delay. Complications are disabling, affect quality of life, and can cause death. Home rehabilitation of a one-year-old baby affected by simple epidermolysis bullosa was performed with active participation of caregivers; this rehabilitation consisted of postural treatment, respiratory exercises, joint mobilization, play therapy, occupational therapy and phoniatric-logopedic care. The patient was able to sit alone, acquired sitting balance, parachute reflex appeared, and smiled when stimulating after 12 weeks of physiotherapy. Treatment must be early (from birth), individualized and comprehensive. Massage and physical agents are contraindicated because they can cause skin damage.

Keywords : epidermolysis bullosa; house calls..

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